Spina Bifida And Hydrocephalus 

      COOL LINKS   

         ORGANIZATIONS       

                                                                            
Spina Bifida Association of America 
Association for Spina Bifida and Hydrocephalus -England
Spina Bifida Association of Queensland
The International Federation for Hydrocephalus and Spina Bifida ("if")
Children with Spina Bifida -Resource page by Linda Rowley

LFSN -Lipomyelomeningocele Family Support Network 
TSC- An online community forum for Tethered Spinal Cord 

The Hydrocephalus Foundation, Inc. (HyFI)
Pediatric Neurosurgery Home Page  -Helps Define SB, ACM, Hydro, Tethered Cord
Neurosurgical Service -Massachusetts General Hospital, Boston
Neurology and Neurosurgery -3 Hospitals in NY City~

World Arnold-Chiari Malformation Association
National Institutes of Health

Latex Allergy Links -by Nancy Mitchell w/great info and links  
Latex Allergy Help
Latex Allergy Resources
A.L.E.R.T -Latex Allergy and Education  
Nazara's- Kids with Latex Allergy   

Health Directory - Health Information and more (new listing)
Family Village -Disability related resources
Our-Kids -Support for Caregivers of Children with Disabilities
World Association of Persons with Disabilities
ParentsPlace.com Bulletin Boards -A place to write to others about SB on a board

SB PERSONAL HOME PAGES

Sharon's Family Home Page  
Planet Zachary -come meet Zachary's family
Tawny's Place -An adult born w/SB
SB-Teens mailing list --Great job Carry
Living with Spina Bifida -by Anna Bio's from the SB-Parents E-mail list.
The Emmons Home Page -come meet Hanna and her family
Dominick's Home Page - meet Dominick and his family
Brenda's Home Page -She is an athlete born with Spina Bifida  

 
HYDROCEPHALUS HOME PAGES

Steve's Hydrocephalus Page -Lots of info on Hydrocephalus 
The Riccio Family Home Page -Michael, was the first to receive the Codman-Medos (programmable) shunt
Simon Allanach's home pages -Adult w/  hydrocephalus 

OTHER LINKS OF INTEREST

Untangling the Web -A list of Disability-Related sites
Federation for Children with Special Needs -Info on: EI, IEP's, Chapter 766, IDEA and more. 
Medic Alert - A medic bracelet could save a life!
Mayatek -Information on Threshold Electrical Stimulation (TES)
PediaNet - Pediatric Health and Information Resource for Parents
Our Other Disability Links (new listings)
List of on-line Magazines

   e-mail me Susete

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